Individuals that are currently battling or have battled Desmoid Tumors will be sharing their fight here….stay tuned for more stories


Max V. is 3 years old with a desmoid tumor in his lower right jaw.  He was diagnosed in August 2012.  He is currently on chemo to keep this monster away.  Max has undergone one successful tumor resection and his tumor has remained stable in the last 4 months since his surgery.